Juliette lived for almost 8 years without a definitive diagnosis aside from "a significant neurological impairment." At 4 months old, Juliette was this little girl in a big girl's body that was ravaged by her affliction. It was when Juliette was 4 years old, following a severe bout with pneumonia, that the extraordinary team at Ste-Justine's spoke with us about palliative care for the first time. We had reached that point, the point of asking THE question, the question that no parent wants to be asked, let alone having to consider.
Following careful consideration, we opted for Le Phare, which offered us the possibility of staying together, the entire family, in an environment that was both comforting and less stressful.
To experience this community, this "village", come into being, is truly comforting.
Juliette, surrounded by volunteers et de Julien, higher up, nurse
"Every one of us, in our own way, makes a difference in how a family navigates their unexpected journey. Affording a family the opportunity to break free from their isolation to join in and be accompanied by the "village" is essential."