{"id":28576,"date":"2026-04-13T14:55:35","date_gmt":"2026-04-13T18:55:35","guid":{"rendered":"https:\/\/phare-lighthouse.com\/?page_id=28576"},"modified":"2026-04-28T15:55:24","modified_gmt":"2026-04-28T19:55:24","slug":"pediatric-palliative-care-what-we-dont-dare-to-name","status":"publish","type":"page","link":"https:\/\/phare-lighthouse.com\/en\/pediatric-palliative-care-what-we-dont-dare-to-name\/","title":{"rendered":"Pediatric Palliative Care:\u00a0What We\u00a0Don\u2019t\u00a0Dare to Name\u00a0"},"content":{"rendered":"\t\t
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Pediatric Palliative Care: What We Don\u2019t Dare to Name <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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The words \u201cpediatric palliative care\u201d can feel intimidating. They often\u00a0bring to mind\u00a0endings, loss, and discomfort.\u00a0<\/span>And yet, at Le Phare, these words tell\u00a0a very different\u00a0story: one of life.\u00a0<\/span><\/b>A life that may be fragile, sometimes short, but filled with meaningful moments that deserve to be supported, celebrated, and cherished.<\/span>\u00a0<\/span><\/p>

Demystifying pediatric palliative care means understanding that it is not about giving up. On the contrary,\u00a0<\/span>it is a deep commitment to children and their families, from the moment of diagnosis and throughout their journey.<\/span><\/b>\u00a0<\/span><\/p>

Because even when time is short, life goes on,<\/span><\/b>\u00a0in smiles, in gentle gestures, in the memories being created.<\/span>\u00a0<\/span><\/p>

Your support allows us to be there, day after day, transforming worry into peace, pain into comfort, and uncertainty into meaningful connection.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Thank you, sincerely, for helping every child thrive\u2026 all the way to the end of life.<\/span><\/span>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Pediatric Palliative Care: What We Don\u2019t Dare to Name <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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The words \u201cpediatric palliative care\u201d can feel intimidating. They often\u00a0bring to mind\u00a0endings, loss, and discomfort.\u00a0<\/span>And yet, at Le Phare, these words tell\u00a0a very different\u00a0story: one of life.\u00a0<\/span><\/b>A life that may be fragile, sometimes short, but filled with meaningful moments that deserve to be supported, celebrated, and cherished.<\/span>\u00a0<\/span><\/p>

Demystifying pediatric palliative care means understanding that it is not about giving up. On the contrary,\u00a0<\/span>it is a deep commitment to children and their families, from the moment of diagnosis and throughout their journey.<\/span><\/b>\u00a0<\/span><\/p>

Because even when time is short, life goes on,<\/span><\/b>\u00a0in smiles, in gentle gestures, in the memories being created.<\/span>\u00a0<\/span><\/p>

Your support allows us to be there, day after day, transforming worry into peace, pain into comfort, and uncertainty into meaningful connection.<\/span>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Thank you, sincerely, for helping every child thrive\u2026 all the way to the end of life.<\/span><\/span>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Discover the story of Sarah-Claude, Esteban\u2019s mother, who passed away at the age of 9<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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My son\u2019s name is Esteban.<\/span>\u00a0<\/span><\/p>

Today, my husband and I live on a small farm with our three daughters. There is life everywhere. And yet, for years, our daily life was shaped by illness.<\/span>\u00a0<\/span><\/p>

Esteban was diagnosed with Sanfilippo syndrome, a degenerative and incurable disease, often referred to as\u00a0<\/span>childhood Alzheimer\u2019s.<\/span><\/b>\u00a0Every five to six months, especially from the age of five, he would gradually lose essential abilities, like walking, swallowing, or speaking.<\/span>\u00a0<\/span><\/p>

And yet, he was a deeply happy little boy who loved Paw Patrol, cuddles, and kisses. His joy for life was contagious. He lived intensely, fully, in his own way.\u00a0<\/span>But for us, as parents, the reality\u00a0was sometimes exhausting.<\/span><\/b>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Respite: Learning to breathe again <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Before discovering Le Phare, we were in survival mode. It was impossible to live a \u201cnormal\u201d life, and I often felt guilty about the experiences my daughters were missing.<\/span>\u00a0<\/span><\/p>

Our first respite weekend was overwhelming. I cried endlessly when I left Esteban. We were afraid. Afraid he\u00a0wouldn\u2019t\u00a0adapt. Afraid things\u00a0wouldn\u2019t\u00a0go well.<\/span>\u00a0<\/span><\/p>

And then, slowly, something shifted. A member of Le Phare team told me, \u201cPlease,\u00a0don\u2019t\u00a0worry. Esteban is happy here. He knows this is his second home.\u201d And it was true. He was comforted, surrounded by love. So many people cared for him.\u00a0<\/span>In that moment, we\u00a0understood:\u00a0he was at home, at Le Phare.<\/span><\/b>\u00a0<\/span><\/p>

Thanks to respite care, I was able to sleep, regain my strength, and most importantly, create memories with my daughters too.\u00a0<\/span>Le Phare\u00a0wasn\u2019t\u00a0just caring for Esteban, it was caring for our entire family.<\/span><\/b>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Support through illness: Being accompanied every step of the way <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Around the age of six, when Esteban stopped eating on his own,\u00a0<\/span>we knew the disease was progressing.<\/span><\/b>\u00a0He was losing weight. He was in pain, though we never fully understood why. The uncertainty was constant.<\/span>\u00a0<\/span><\/p>

During this fragile time, Le Phare worked hand in hand with\u00a0all of\u00a0our care teams.\u00a0<\/span>We were never alone in making\u00a0difficult decisions.<\/span><\/b>\u00a0<\/span><\/p>

Le Phare supported us throughout this journey. While my husband was going through a deep depression, Le Phare helped me stay strong, to continue being the pillar of our family. Without them, I would have\u00a0collapsed.It\u2019s\u00a0impossible to name every gesture that marked me,\u00a0<\/span>but they accompanied Esteban with dignity until the very end.<\/span><\/b>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Bereavement support: Learning to live with the absence <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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After his passing, we lived in a fog. We kept functioning, without truly realizing what had just happened.<\/span>\u00a0<\/span><\/p>

It was thanks to a call from a social worker at Le Phare that I joined a support group for grieving parents.\u00a0<\/span>That group helped me face my pain and begin the long, difficult journey of grieving my son.<\/span><\/b>\u00a0<\/span><\/p>

Very few people can\u00a0truly understand\u00a0a journey like ours, how much Esteban and his illness filled every part of my life. Being able to share with others who felt similar emotions was incredibly liberating.\u00a0<\/span>It helped me accept my reality and, slowly, begin to live again.<\/span><\/b>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Discover the story of Sarah-Claude, Esteban\u2019s mother, who passed away at the age of 9<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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My son\u2019s name is Esteban.<\/span>\u00a0<\/span><\/p>

Today, my husband and I live on a small farm with our three daughters. There is life everywhere. And yet, for years, our daily life was shaped by illness.<\/span>\u00a0<\/span><\/p>

Esteban was diagnosed with Sanfilippo syndrome, a degenerative and incurable disease, often referred to as\u00a0<\/span>childhood Alzheimer\u2019s.<\/span><\/b>\u00a0Every five to six months, especially from the age of five, he would gradually lose essential abilities, like walking, swallowing, or speaking.<\/span>\u00a0<\/span><\/p>

And yet, he was a deeply happy little boy who loved Paw Patrol, cuddles, and kisses. His joy for life was contagious. He lived intensely, fully, in his own way.\u00a0<\/span>But for us, as parents, the reality\u00a0was sometimes exhausting.<\/span><\/b>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Respite: Learning to breathe again <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Before discovering Le Phare, we were in survival mode. It was impossible to live a \u201cnormal\u201d life, and I often felt guilty about the experiences my daughters were missing.<\/span>\u00a0<\/span><\/p>\n

Our first respite weekend was overwhelming. I cried endlessly when I left Esteban. We were afraid. Afraid he\u00a0wouldn\u2019t\u00a0adapt. Afraid things\u00a0wouldn\u2019t\u00a0go well.<\/span>\u00a0<\/span><\/p>\n

And then, slowly, something shifted. A member of Le Phare team told me, \u201cPlease,\u00a0don\u2019t\u00a0worry. Esteban is happy here. He knows this is his second home.\u201d And it was true. He was comforted, surrounded by love. So many people cared for him.\u00a0<\/span>In that moment, we\u00a0understood:\u00a0he was at home, at Le Phare.<\/span><\/b>\u00a0<\/span><\/p>\n

Thanks to respite care, I was able to sleep, regain my strength, and most importantly, create memories with my daughters too.\u00a0<\/span>Le Phare\u00a0wasn\u2019t\u00a0just caring for Esteban, it was caring for our entire family.<\/span><\/b>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t

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Support through illness: Being accompanied every step of the way <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Around the age of six, when Esteban stopped eating on his own,\u00a0<\/span>we knew the disease was progressing.<\/span><\/b>\u00a0He was losing weight. He was in pain, though we never fully understood why. The uncertainty was constant.<\/span>\u00a0<\/span><\/p>

During this fragile time, Le Phare worked hand in hand with\u00a0all of\u00a0our care teams.\u00a0<\/span>We were never alone in making\u00a0difficult decisions.<\/span><\/b>\u00a0<\/span><\/p>

Le Phare supported us throughout this journey. While my husband was going through a deep depression, Le Phare helped me stay strong, to continue being the pillar of our family. Without them, I would have\u00a0collapsed.It\u2019s\u00a0impossible to name every gesture that marked me,\u00a0<\/span>but they accompanied Esteban with dignity until the very end.<\/span><\/b>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t

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Bereavement support: Learning to live with the absence <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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After his passing, we lived in a fog. We kept functioning, without truly realizing what had just happened.<\/span>\u00a0<\/span><\/p>

It was thanks to a call from a social worker at Le Phare that I joined a support group for grieving parents.\u00a0<\/span>That group helped me face my pain and begin the long, difficult journey of grieving my son.<\/span><\/b>\u00a0<\/span><\/p>

Very few people can\u00a0truly understand\u00a0a journey like ours, how much Esteban and his illness filled every part of my life. Being able to share with others who felt similar emotions was incredibly liberating.\u00a0<\/span>It helped me accept my reality and, slowly, begin to live again.<\/span><\/b>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t

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Even today, Le Phare\u00a0remains\u00a0a deeply\u00a0important place\u00a0for our family. We often underestimate the power of community. The pain\u00a0doesn\u2019t\u00a0disappear, but it becomes a little easier to carry.<\/span>\u00a0<\/span><\/p>

To our community of donors, I would like to say this:<\/span><\/b>\u00a0<\/span><\/p>

Every donation allows a family like mine to breathe. Every donation supports a child. Every donation uplifts parents, siblings, and grandparents.<\/span>\u00a0<\/span><\/p>

Every donation changes a life.\u00a0<\/span><\/b>\u00a0<\/span><\/p>

Thank you for being part of this light.<\/span><\/b>\u00a0<\/span><\/p>

\u2014 Sarah-Claude, mother of Esteban, who passed away at the age of 9<\/span>\u00a0<\/span><\/b>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Today, dare to support life. Dare to support Le Phare.<\/span><\/b>\u00a0<\/span><\/h2>

Pediatric palliative care does not follow a linear path. Each child and each family experiences a unique journey: needs, interventions, and support evolve over time, depending on the progression of the illness. And we are here to support them thanks to you and your donations. Thank you\u00a0from the bottom of our hearts.<\/span>\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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25$<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Provide a soothing bath experience for a child, like a moment at the spa<\/span><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDonate<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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50$<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Offer 1 hour of therapeutic pool time to relax and play<\/span><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDonate<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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100$<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
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Provide 1 hour of complementary therapy to help a child thrive<\/span><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDonate<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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200$<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Create a lasting keepsake to preserve a child\u2019s memory for their family<\/span><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDonate<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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25$<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Provide a soothing bath experience for a child, like a moment at the spa<\/span><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDonate<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
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50$<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Offer 1 hour of therapeutic pool time to relax and play<\/span><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDonate<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
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100$<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
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Provide 1 hour of complementary therapy to help a child thrive<\/span><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDonate<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
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200$<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Create a lasting keepsake to preserve a child\u2019s memory for their family<\/span><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDonate<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t
\n\t\t\t\t<\/i>\t\t\t<\/div>\n\t\t\t
\n\t\t\t\t<\/i>\t\t\t<\/div>\n\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Your donation can transform daily life for children and families at Le Phare.\u00a0<\/span><\/span><\/strong><\/p>

Thank you for your generosity.<\/span><\/span>\u00a0<\/span><\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

FR Spring campaign Pediatric Palliative Care: What We Don\u2019t Dare to Name The words \u201cpediatric palliative care\u201d can feel intimidating. They often\u00a0bring to mind\u00a0endings, loss, and discomfort.\u00a0And yet, at Le Phare, these words tell\u00a0a very different\u00a0story: one of life.\u00a0A life that may be fragile, sometimes short, but filled with meaningful moments that deserve to be supported, celebrated, and cherished.\u00a0 Demystifying pediatric palliative care means understanding that it is not about giving up. On the contrary,\u00a0it is a deep commitment to children and their families, from the moment of diagnosis and throughout their journey.\u00a0 Because even when time is short, life goes on,\u00a0in smiles, in gentle gestures, in the memories being created.\u00a0 Your support allows us to be there, day after day, transforming worry into peace, pain into comfort, and uncertainty into meaningful connection. Thank you, sincerely, for helping every child […]<\/p>\n","protected":false},"author":19,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_canvas","meta":{"_acf_changed":false,"_eb_attr":"","advgb_blocks_editor_width":"","advgb_blocks_columns_visual_guide":"","footnotes":""},"class_list":["post-28576","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nPediatric Palliative Care:\u00a0What We\u00a0Don\u2019t\u00a0Dare to Name\u00a0 - Le Phare<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/phare-lighthouse.com\/en\/pediatric-palliative-care-what-we-dont-dare-to-name\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pediatric Palliative Care:\u00a0What We\u00a0Don\u2019t\u00a0Dare to Name\u00a0 - Le Phare\" \/>\n<meta property=\"og:description\" content=\"FR Spring campaign Pediatric Palliative Care: What We Don\u2019t Dare to Name The words \u201cpediatric palliative care\u201d can feel intimidating. They often\u00a0bring to mind\u00a0endings, loss, and discomfort.\u00a0And yet, at Le Phare, these words tell\u00a0a very different\u00a0story: one of life.\u00a0A life that may be fragile, sometimes short, but filled with meaningful moments that deserve to be supported, celebrated, and cherished.\u00a0 Demystifying pediatric palliative care means understanding that it is not about giving up. On the contrary,\u00a0it is a deep commitment to children and their families, from the moment of diagnosis and throughout their journey.\u00a0 Because even when time is short, life goes on,\u00a0in smiles, in gentle gestures, in the memories being created.\u00a0 Your support allows us to be there, day after day, transforming worry into peace, pain into comfort, and uncertainty into meaningful connection. Thank you, sincerely, for helping every child […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/phare-lighthouse.com\/en\/pediatric-palliative-care-what-we-dont-dare-to-name\/\" \/>\n<meta property=\"og:site_name\" content=\"Le Phare\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/PhareEnfantsFamilles\" \/>\n<meta property=\"article:modified_time\" content=\"2026-04-28T19:55:24+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/phare-lighthouse.com\/wp-content\/uploads\/2024\/04\/logo_phare_25e-1-4.png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"12 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/phare-lighthouse.com\/en\/pediatric-palliative-care-what-we-dont-dare-to-name\/\",\"url\":\"https:\/\/phare-lighthouse.com\/en\/pediatric-palliative-care-what-we-dont-dare-to-name\/\",\"name\":\"Pediatric Palliative Care:\u00a0What We\u00a0Don\u2019t\u00a0Dare to Name\u00a0 - Le Phare\",\"isPartOf\":{\"@id\":\"https:\/\/phare-lighthouse.com\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/phare-lighthouse.com\/en\/pediatric-palliative-care-what-we-dont-dare-to-name\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/phare-lighthouse.com\/en\/pediatric-palliative-care-what-we-dont-dare-to-name\/#primaryimage\"},\"thumbnailUrl\":\"http:\/\/phare-lighthouse.com\/wp-content\/uploads\/2024\/04\/logo_phare_25e-1-4.png\",\"datePublished\":\"2026-04-13T18:55:35+00:00\",\"dateModified\":\"2026-04-28T19:55:24+00:00\",\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/phare-lighthouse.com\/en\/pediatric-palliative-care-what-we-dont-dare-to-name\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/phare-lighthouse.com\/en\/pediatric-palliative-care-what-we-dont-dare-to-name\/#primaryimage\",\"url\":\"http:\/\/phare-lighthouse.com\/wp-content\/uploads\/2024\/04\/logo_phare_25e-1-4.png\",\"contentUrl\":\"http:\/\/phare-lighthouse.com\/wp-content\/uploads\/2024\/04\/logo_phare_25e-1-4.png\"},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/phare-lighthouse.com\/#website\",\"url\":\"https:\/\/phare-lighthouse.com\/\",\"name\":\"Le Phare\",\"description\":\"Une lumière pour l'enfant et sa famille\",\"publisher\":{\"@id\":\"https:\/\/phare-lighthouse.com\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/phare-lighthouse.com\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/phare-lighthouse.com\/#organization\",\"name\":\"Le Phare, Enfants et Familles\",\"url\":\"https:\/\/phare-lighthouse.com\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/phare-lighthouse.com\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/phare-lighthouse.com\/wp-content\/uploads\/2021\/02\/Phare_Logo_Header.png\",\"contentUrl\":\"https:\/\/phare-lighthouse.com\/wp-content\/uploads\/2021\/02\/Phare_Logo_Header.png\",\"width\":302,\"height\":246,\"caption\":\"Le Phare, Enfants et Familles\"},\"image\":{\"@id\":\"https:\/\/phare-lighthouse.com\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/PhareEnfantsFamilles\",\"https:\/\/www.instagram.com\/lephareenfantsetfamilles\/?hl=fr-ca\",\"https:\/\/www.linkedin.com\/company\/le-phare-enfants-et-familles\",\"https:\/\/www.youtube.com\/user\/PhareEnfantsFamilles\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Pediatric Palliative Care:\u00a0What We\u00a0Don\u2019t\u00a0Dare to Name\u00a0 - Le Phare","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/phare-lighthouse.com\/en\/pediatric-palliative-care-what-we-dont-dare-to-name\/","og_locale":"en_US","og_type":"article","og_title":"Pediatric Palliative Care:\u00a0What We\u00a0Don\u2019t\u00a0Dare to Name\u00a0 - Le Phare","og_description":"FR Spring campaign Pediatric Palliative Care: What We Don\u2019t Dare to Name The words \u201cpediatric palliative care\u201d can feel intimidating. 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